Misty Johnson has taken on some of the country's toughest endurance races.
She has completed eight Ironman triathlons, including the world championships in Hawaii. And just last month, she completed the Blue Ridge Double Marathon.
Now Johnson is preparing for her toughest race yet as a participant in September's Endure Ultra Triathlon at Smith Mountain Lake. The race featured a mind-boggling 4.8-mile swim, 224-mile bike and 52.4-mile run.
Completing the race would be an incredible feat for any athlete. But for Johnson, it's another way to keep fighting.
She's living with multiple sclerosis.
With each race, Johnson attemps to prove to herself, her doctors and any doubters that she can push her body to keep moving. Despite the challenges, she persists.
'Like an MS plague'
The determined endurance athlete she is today is a far cry from who she was in 2016 when first diagnosed. She admits those early days were difficult.
"It was really tough in the beginning," Johnson said about learning she had multiple sclerosis from doctors after an MRI.
"They actually took me aside after that and immediately brought me to a neurologist and told me they needed to start steroids right away," she recalls. "The doctor said it was like an MS plague and that he'd never seen anything like before because my whole brain and spine was all lesions and they could not count how many there were because they were so joined together."
![]()
Misty Johnson is training for a 281.2-mile ultra-triathlon while
living with multiple sclerosis. The Endure Ultra Triathlon will be
held at Smith Mountain Lake State Park in September. She is
pictured at the state park on May 1.
HEATHER ROUSSEAU, The Roanoke Times
Johnson experienced neurological issues like balance problems, slurred speech, memory loss and leg numbness. She also suffered from severe vision loss that forced her to stop driving, further taking away her independence.
"I actually couldn't even make it around the block because my MS was messing with everything," Johnson said. "It messed with my memory. I was having trouble remembering who people were. Remembering where I'm at. All kinds of things were happening with the MS."
Not fearing the diagnosis
Johnson, living in Washington at the time with her husband Seth, decided to take yoga and water aerobics classes at a YMCA. A local friend encouraged her to stop living in fear following her diagnosis. That push helped to put her on the path she is on now.
As she got more comfortable working out, Johnson said she mentioned to friends and staff at her YMCA that she was interested in competing in a triathlon. They encouraged her to try an Ironman instead.
Johnson agreed before really knowing what an Ironman entailed. The grueling event includes a 2.4-mile swim, 112-mile bike and 26.2-mile marathon all completed consecutively.
Completing an Ironman is a momentous accomplishment for anyone, but Johnson faced her own unique challenges. In addition to the near-superhuman endurance required to complete the race, Johnson had to deal with vision loss and numbness in her legs — symptoms that worsen as her body heats up during competition.
"It gets really dark like someone is turning down the lights," Johnson said.
To help her during previous races, she has assistance from guides that are tethered to her during the swim and run to make sure she stays on course. They also assist Johnson with the use of a tandem bike.
She was able to find guides for her first two Ironman races. Eventually, Johnson's husband agreed to guide her during her races.
![]()
Misty Johnson is training for a 281.2-mile ultra-triathlon at
Smith Mountain Lake State Park, while living with multiple
sclerosis. She is pictured with her husband, Seth Johnson, who has
acted as her guide for triathlon races.
HEATHER ROUSSEAU, The Roanoke Times
"I caught the bug because of her energy," Seth Johnson said of competing in his first Ironman with his wife. The duo has since competed in four Ironman races together.
He calls his wife an inspiration seeing what she has accomplished. He also admits to questioning her decision to take on these races without any prior racing experience.
"In 2022, one mile was the longest distance in the world for her," Seth said.
Seeing her now, Seth said he encourages Misty to continue challenging herself. He doesn't want her to stop fighting.
"If she can take on an Ironman and MS, what can't she take on?" Seth said.
Johnson's biggest challenge yet
Becoming an endurance athlete has had its own benefits for Johnson. She said the training has helped her get off a lot of medicine she was prescribed due to her MS. In those early days she was given a bag of medicine so large at the pharmacy that they couldn't pass it through the window.
"My health has gotten so much better since I started working out like this," Johnson said. "I'm not sure why other than it just helps me not have so many reactions during the day. It helps me manage stress throughout the day and handle life better overall."
Johnson and her husband moved to Smith Mountain Lake in 2024. Since then, she has continued to train and compete in endurance races around the country.
Now a lake resident, Johnson decided to take on a local challenge and found the Endure Ultra Triathlon held at Smith Mountain Lake State Park. She also wants to complete this race on her own, without any guide.
"When I saw this race course, I said it was made just for me," she said.
![]()
Misty Johnson is training for a 281.2-mile ultra-triathlon while
living with multiple sclerosis. The Endure Ultra Triathlon will be
held at Smith Mountain Lake State Park in September. She is
pictured at the state park on May 1.
HEATHER ROUSSEAU, The Roanoke Times
While it is an incredible 281.2 miles split between running, biking and swimming, it is also a very short course loop. Johnson said that will help her to stay on track and not get lost when her vision starts to darken when she overheats.
Her husband plans to set up a tent with ice water and an ice bath to get her temperature down during the race. Johnson said cooling down her core temperature helps to bring her vision back and reduce some of the other symptoms.
This race will be Johnson's biggest challenge yet. She said this race could be the longest race a woman with multiple sclerosis has completed if she is able to get to the finish line before the 36-hour cutoff.
'So much more than me'
In the aftermath of being diagnosed, Johnson said, she competed to prove she could still do it. Now, that has changed.
"When I got around the community of people at the gym and the Ironman events and they were so encouraging and inspired that I was doing it, that just made it so much more than me," Johnson said. "That's why I'm trying to share my journey, because I want to help people see that life doesn't end. You can keep going."
Johnson said she learned of the impact she can have when she met another competitor at an Ironman race who was blind and was inspired by her and wanted to meet her. She realized then that her story could help others to see that an MS diagnosis does not mean giving up.
This race at Smith Mountain Lake also serves as a fundraiser for the National Multiple Sclerosis Society. Johnson has set a goal of $4,000 she wants to raise by the time the race ends.
Leading up the September race, Johnson is already training several days a week to make sure her body is ready for the grueling challenge.
As she prepares, Johnson is documenting the race on social media. She shares updates on Facebook, TikTok, Instagram and YouTube to let people know about her journey with MS.
"I really want to show all the people with MS and chronic illness that your life isn't over after your diagnosis," she said. "Sometimes it just takes some adapting and some patience with yourself and your body and you can get things done.
"You just have to be kind to yourself and work on it every day and adapt. It might not look like you thought it would be, but it's still possible."